Nov 3

FibroAction teams up with the Charities Aid Foundation to enable online donations

You can now easily support FibroAction by making a secure online donation through the Charities Aid Foundation (CAF).

Donate through CAFOnline

FibroAction is run entirely by volunteers and costs are kept down as much as possible, but funding restrictions still limit how much can be acheived.

"There is so much to be done to help the millions of Fibro sufferers in the UK" says FibroAction founder Lindsey Middlemiss, "and although I'm delighted with how much progress we have made over the last 6 months, we could get so much more done if we only had the time and funds.".

FibroAction has been running since April 2008 and acheived registered charity status in September 2008.

Despite only having been running for 6 months with very limited funding options because of the time needed to acheieve registered charity status, FibroAction has been managing to make a difference already.

Highlights of FibroAction's first 6 months include:

  • NHS Direct updating its online information on Fibro in July following FibroAction's input. NHS Choices and the NHS Clinical Knowledge Summaries (formerly PRODIGY) subsequently also updated their information.
  • The formation of a Professional Advisory Board (PAB), which now numbers eight, including Prof John Davies of the NHS Fibro Clinic at Guy's Hospital, London and renowned American experts such as Patrick Wood MD and Daniel Clauw MD.
  • The IASP World Congress on Pain in Glasgow, which FibroAction founder Lindsey Middlemiss attended. Daniel Clauw MD gave a talk on Fibro to around 2,500 delegates.
  • Producing our first 'About Fibro' leaflet for patients. The downloadable printable format of the leaflet saved FibroAction considerable funds and means that it can be easily updated without incurring much cost at all.
  • Acheiving registered charity status despite current Charity Commission restrictions.
  • The announcement that US Fibro expert Andrew Holman MD will be giving a Christmas lecture in the UK. The lecture, organised by FibroAction in association with Prof Davies of the Guy's Hospital Fibro Clinic will be held at Guy's Hospital, London on December 22nd and CPD approval is being sought from the Royal College of Physicians for this event. For more information, see the events page.
  • Patient UK updating their information on Fibro following FibroAction's input.

To help FibroAction continue to work to raise awareness of Fibro in the UK, perhaps you could make a small donation via CAF - click here if you can help us in this way.

Support FibroAction by shopping online at the FibroAction Spreadshirt shop fibroaction.spreadshirt.netFor other ways in which you can support FibroAction's work, see the Support FibroAction page.

If you are interested in volunteering for FibroAction, please email us at info@fibroaction.org.

Why donate through CAF?

It’s fast, secure, and you can make a donation straight from your credit or debit card. You can even increase the value of your gift by up to 28% with Gift Aid – no strings attached.

CAF (Charities Aid Foundation) is a registered charity itself. It makes no profits and it saves charities like FibroAction money by reclaiming Gift Aid on our behalf. This means that not only can tax that you paid on the amount you donate be added to your donation through GiftAid, but you know that this money is not being wasted in administration costs.

If you’re a higher rate tax payer, you can print a receipt to use in your tax return, and claim back the difference between basic and higher rate tax in personal tax relief.

You can make your gift anonymously, dedicate it to a loved one with Fibro or even request that it be used for a specific ongoing or planned FibroAction project.

Donate through CAFOnline