University of Gloucestershire looking for participants for exercise and Fibro trial Researchers at the University of Gloucestershire are looking for participants for a study looking at how exercise can help people with Fibro.
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FibroAction seeking to recruit Chief Executive FibroAction are seeking to recruit someone for the new and exciting role of Chief Executive of FibroAction.
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Fibro Author Dr Kevin P White to give UK talks Canadian Fibro expert and author Dr Kevin P White is doing 2 talks in the UK over the next month, talking about his research and book "Breaking Thru the Fibro Fog".
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Prescription Charges Coalition call for exemption for long-term conditions The Prescription Charges Coalition, of which FibroAction is a member, have this week called for exemption for long-term conditions
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New Complementary Therapies and Fibro factsheet A reviewed and updated new format factsheet on Complementary Therapies & Fibro has been launched.
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Two new key members for FibroAction team FibroAction are delighted to announce the addition of two new key team members: Catherine Hodgson as Operations Director and Emma Jefferies as Administrator.
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Experiences of Gloucestershire services for Fibro needed Ally Reeve of FibroBabes is looking to gather evidence of people's experience with NHS services for Fibro in Gloucestershire.
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Fibromyalgia Research Study The University of Salford is carrying out research to develop a daily activities questionnaire and they have asked FibroAction to help them find participants.
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Do the Berkshire Charities Fun Run in aid of FibroAction Would you or anyone you know like to do the Berkshire Charities 10k and 2.5k Fun Run in aid of FibroAction on Sunday 21st October?
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Updated information on an Alert about price changes for Alpha-Stim devices FibroAction have been sent the following alert about a forthcoming price hike for the Alpha-Stim device. FibroAction do not recommend this or any other device - this is provided for your information only.
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Bristol North Group Hero of the Month scheme The Bristol North CFS/ME Fibro Support Group has started a scheme to nominate a monthly certificate for a ‘FM.E Hero of the Month’.
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The Big Give Fortnum and Mason Charity Christmas Party Raise money for FibroAction by buying a ticket to the Big Give Fortnum & Mason Charity Christmas Party. 100% of ticket sales go to charity!
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FibroAction founder Lindsey Middlemiss announces plans to step down from her current role After 4 ½ years at the helm of the charity, FibroAction founder Lindsey Middlemiss has announced that she plans to step down from her current role after the 2012 FibroAction AGM. FibroAction are now actively looking for 2 people to replace the main day-to-day roles Lindsey fills for the charity, namely Operations Director and Information Manager.
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Prescription Charges Survey The Prescription Charges Coalition, of which FibroAction is a member, are currently running a survey
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UK Fibromyalgia Awareness Week 2012 UK Fibromyalgia Awareness Week 2012 is 3-9 September 2012
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Meet FibroAction Founder Lindsey Middlemiss this Awareness Week Meet with FibroAction Founder Lindsey Middlemiss this UK Fibro Awareness Week
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International Fibromyalgia Awareness Day May 12th is the International Fibromyalgia Awareness Day, raising awareness of this condition around the world.
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Aberdeen Fibromyalgia Support Group Celebrates its 10th Birthday Aberdeen Fibromyalgia Support Group celebrates its 10th birthday this year and they have sent us information on their planned celebrations.
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Portsmouth Rheumatology collecting Tesco Vouchers The Portsmouth Rheumatology department are once again collecting the Tesco Vouchers for Schools and Clubs.
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Help by signing the Prescription Charges Coalition Petition Help support the Prescription Charges Coalition's work to reduce the cost of prescriptions for people with long-term medical conditions by signing the UK Government e-petition
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FibroAction Becomes Information Standard Accredited FibroAction has been successful in its application to become an Information Standard accredited information provider.
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Petition urging NICE to approve Benlysta Petition urging NICE to approve Benlysta, the only new drug for Lupus in half a century.
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Arthritis Research UK survey on the impact of Personal Health Budgets Arthritis Research UK asking for help from people with musculoskeletal conditions, including Fibro, with an online survey on the impact of Personal Health Budgets.
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Online Survey on the Impact of Living with Invalidation of Fibromyalgia People diagnosed with Fibro are being sought for an online questionnaire as part of a research project looking at the impact of living with invalidation of Fibro.
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New Fibro Support Group for north Cornwall A meeting is being held on Monday 21st March to discuss the setting up of a new support group for people with Fibro and CFS/ME in Wadebridge, Cornwall.
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Lindsey Middlemiss on maternity leave Lindsey Middlemiss, the FibroAction founder and chair, is now on maternity leave. Please bear with us at this time.
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Lynn Diggins joins the board of trustees of FibroAction We are delighted to announce that Lynn Diggins has joined the board of directors/trustees of FibroAction.
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Donating Blood with Fibro Clarification of the position regarding blood donation from patients with Fibro, in light of the recent ban on blood donation by people with CFS/ME.
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Tickets available on door for lecture this evening Some tickets will be available on the door for this evening's lecture by US expert Andrew J Holman MD.
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UK Fibromyalgia Syndrome Awareness Week September 7-13th is UK Fibromyalgia Syndrome Awareness Week. Will you be doing anything to help raise awareness?
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May update for the Directory of UK Fibro Support Groups The FibroAction website Support Group Directory has recently been updated again.
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International Internet Study seeking participants Participants are being sought to take part in a large-scale international internet questionnaire study about understanding and lack of understanding for rheumatic diseases, including Fibro.
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Response to Dr Crippen Guardian article mentioning Fibromyalgia On Tuesday March 2nd, the "Dr Crippen" column in the Guardian newspaper had an article about whiplash, in which derogatory comments were made about Fibromyalgia Syndrome (Fibro).
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Compiling a List of NHS Fibro Clinics Do you attend an NHS clinic or course for Fibro patients? If so, we'd like to know about it!
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Government Petitions Needing Your Signature A round-up of the petitions on the Number10.gov.uk website that relate to Fibro that need your "signature".
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Petition to get more disabled models in ad campaigns A petition asking high street retailers in the UK to involve disabled models in their advertising campaigns
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UK Fibromyalgia Alliance update An update on the proposed UK Fibromyalgia Alliance, following a meeting between FibroAction, Fibromyalgia Association UK and UK Fibromyalgia
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FibroAction supports the UK Fibromyalgia Alliance FibroAction are proud to support the UK Fibromyalgia Alliance, a new intiative proposed by UK Fibromyalgia, who produce FaMily magazine.
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Support the Prescription Promise Campaign The Prescription Promise Campaign is calling on Gordon Brown to keep the promise he made in his speech to Labour Party Conference 2008 to abolish prescription charges for people with all long-term conditions.
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UK Fibromyalgia Support Group Directory updated The FibroAction Support Group Directory has recently been updated.
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Disability Benefits update Following the furore over the Government Green Paper, ministers finally confirmed last month that DLA for those people of working age would not be scrapped. However, AA and DLA for the over-65s are still under threat.
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Help us by Sending E Cards this Christmas Save money, save paper and help support FibroAction by sending e-cards for Christmas. FibroAction are one of the charities that can benefit from EveryClick's 'Christmas? Considerate Done' campaign, running for its second year.
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New Campaign for Yellow Card Scheme The Medicines and Healthcare products Regulatory Agency (MHRA) have launched a new, targeted campaign to increase public awareness of the Yellow Card Scheme.
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Dangers of buying illegal medications online highlighted The Medicines and Healthcare products Regulatory Agency (MHRA) has announced that an international week of action targeting the online sale of counterfeit and illicit medicines has highlighted the dangers of buying such medicines online.
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Warning over unlicensed herbal valium The Medicines and Healthcare products Regulatory Agency (MHRA) this month issued a press release warning people of the dangers of taking unlicensed herbal medicines containing aconite.
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DLA saved for some Health secretary Andy Burnham MP has said that he has ‘heard the concerns and worries about disability living allowance’.
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Government refuses to rule out axing DLA A senior government minister has confirmed to the House of Lords that axing DLA has definitely not been ruled out, despite assurances previously being given by care minister Phil Hope
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New advice on over the counter analgesics containing codeine The Medicines and Healthcare products Regulatory Agency (MHRA) announced new advice on over-the-counter (OTC) medicines containing codeine and dihydrocodeine (DHC) to minimise the risk of overuse and addiction.
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Charity Times Awards 2009 FibroAction was short-listed as Best New Charity at the Charity Times Awards 2009, but unfortunately we did not win on the night.
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West Berkshire Neurological Alliance extends time limit for pain survey The West Berkshire Neurological Alliance (WBNA), of which FibroAction is a member, are carrying out a survey of pain and pain management experiences from people in their local PCT area.
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September newsletter now online The September edition of the FibroAction e-newsletter is now available online.
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Volunteer to help FibroAction raise awareness of Fibromyalgia Syndrome FibroAction is looking for more people to join our team of volunteers! We are interested in getting a range of volunteers with various skills, including both people with Fibro and people without the condition.
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Swine Flu and Fibromyalgia Syndrome information The Swine flu pandemic poses a particular challenge to the Fibro community. The following information may be of use.
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Shaping the Future of Care Together Green Paper threatens AA and DLA benefits A Government Green Paper has proposed a number of changes to the way care in the UK is funded and managed, including the possibility of scrapping disability benefits, such as Attendance Allowance (AA) and possibly also Disability Living Allowance (DLA).
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Panorama apologise for The Trauma Industry error The Panorama show have apologised for any distress caused by The Trauma Industry programme incorrectly referring to Fibromyalgia Syndrome as a psychological disorder.
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Breaking News Lyrica appeal refused in Europe FibroAction have just been informed by Pfizer that their appeal to get marketing approval for Lyrica as a treatment for Fibromyalgia Syndrome (Fibro) in the EU has been rejected
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FibroAction shortlisted to win a Charity Times Award We are delighted to announce that FibroAction has been shortlisted to win a Charity Times Award in the Best New Charity category.
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APPG Meeting Cancelled The meeting of the All Party Parliamentary Group (APPG) on Fibromyalgia Syndrome, scheduled to take place this afternoon has been cancelled.
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Ann Keen MP to address meeting of the APPG on Fibromyalgia Syndrome The Parliamentary Under-Secretary of State for Health, Ann Keen MP, will address a meeting of the All Party Parliamentary Group (APPG) for Fibromyalgia Syndrome on Monday.
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Jacqui Mayes Nutrition and Fibro Talk Nutritionist Jacqui Mayes will be giving a talk on Nutrition & Fibro to the Reading Fibromyalgia Support Group on Monday July 13th.
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Follow FibroAction on Twitter tonight from the Times Cheltenham Science Festival FibroAction founder Lindsey Middlemiss is hoping to tweet from the Pain lecture at the Times Cheltenham Science Festival tonight.
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Report on the first UK Parliament Debate on Fibromyalgia Syndrome A report by FibroAction founder Lindsey Middlemiss on the first UK Parliamentary debate on Fibro that took place on May 5th 2009.
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Application for a UK NICE Guideline for Fibromyalgia Syndrome is Unsuccessful The application for a NICE Guideline on Fibromyalgia Syndrome to be developed has been rejected by the National Institute for Clinical Excellence (NICE), it was revealed at a parliamentary debate yesterday.
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First UK Parliament Debate on Fibromyalgia Syndrome Initial report on the first ever UK Parliamentary debate on Fibromyalgia Syndrome that took place on 5th May 2009
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UK Parliament Westminster Hall debate on Fibromyalgia Syndrome to take place FibroAction is delighted to announce that the All Party Parliamentary group on Fibromyalgia Syndrome has secured a Westminster Hall debate on Fibro. Unfortunately, the debate is scheduled for Tuesday morning, leaving very little time.
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Response from FibroAction to Lyrica EU Refusal Second blow for millions of Fibromyalgia Syndrome sufferers as European Medicines Agency rejects another drug
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Lyrica refused European Marketing Approval Breaking News: FibroAction has been informed that pharmaceutical giant Pfizer have been refused marketing approval for Lyrica as a treatment for Fibromyalgia Syndrome (Fibro) in Europe.
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Telegraph article FibroAction founder Lindsey Middlemiss was this week mentioned in the health section of the Daily Telegraph, as part of an article on self-diagnosis using the internet
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FDA Approval for Savella Forest Laboratories, Inc. and Cypress Bioscience, Inc. have announced that Savella (milnacipran hydrochloride), a selective serotonin and norepinephrine dual reuptake inhibitor, has been approved by the U.S. Food and Drug Administration (FDA) for the management of Fibromyalgia Syndrome (Fibro).
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Patient UK updates their Fibromyalgia Syndrome information FibroAction is pleased to announce that, following our input, Patient UK has updated their online information on Fibromyalgia Syndrome.
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FibroAction teams up with the Charities Aid Foundation to enable online donations You can now easily support FibroAction by making a secure online donation through the Charities Aid Foundation (CAF).
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Severe blow for millions of Fibro sufferers as European Medicines Agency rejects first drug approval The millions of Fibromyalgia Syndrome sufferers across Europe have this week received a severe knock-back with the announcement that that the Committee for Medicinal Products for Human Use (CHMP) at the European Medicines Agency (EMEA) has rejected the application of the first medicine, Duloxetine hydrochloride, trying to get approval as a treatment for Fibromyalgia Syndrome (Fibro) in the EU.
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FibroAction joins Chronic Pain Policy Coalition FibroAction is proud to announce that it is now a member of The Chronic Pain Policy Coalition.
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IASP 12th World Congress on Pain The International Association for the Study of Pain®'s (IASP's) World Congress on Pain is being held in Glasgow this week and a number of talks, workshops and poster presentations relevant to Fibromyalgia Syndrome (Fibro) are taking place.
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No Medications UK Licensed for Fibro The MHRA, the UK medications licensing agency, has confirmed that there are currently no medications or medical devices currently licensed specifically for use for treating Fibromyalgia Syndrome (Fibro) in the UK.
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Fibro at the EULAR Congress of Rheumatology The recent EULAR 2008 Annual European Congress of Rheumatology took place from 11th to 14th June in Paris and 93 abstracts discussing Fibromyalgia Syndrome were submitted to the congress.
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Professional Advisory Board Launch FibroAction is proud to announce the launch of our Professional Advisory Board.
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WEGO Health do Interview with FibroAction Founder WEGO Health have done a Spotlight interview with FibroAction founder, Lindsey Middlemiss.
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